Community post

Any news?!?

My gender u/s isn't until 7:30 this evening.

I just called my Dr. to see if they had the results of my quad screen. My Dr. actually got on the phone, so I knew it probably wasn't good. He said at my age my results for Downs should've been 1:168 but they were 1:25. He told me before that a good percentage of women in my age bracket with results like this find out with further testing that baby is just fine. but I can't help but worry. In fact, I'm having a hard time getting excited about the u/s tonight now. I'm waiting on a call from maternal fetal medicine to schedule an u/s. Whatever happens...I'll still love this baby and cherish this baby forever. This is my little miracle. But my heart is aching right now and I don't really know how to feel. Kind of numb. I called Barry, against my better judgment. I didn't want him to worry all day too...but it's not the kind of thing I want to keep from him either. Please tell me not to worry. Please tell me that baby is going to be just fine and this worry is temporary.

I thought it was this morning. DUH.

I pulled some comments from other moms for you:

"Those are notorious for providing false positives. I had like a 1 in 100 chance with my son. My good friend had one in 10. They went an had an amnio and were TOLD their child had Down Sydrome. The baby was born 100% healthy and without down sydnrome. I would personally take that test result with a grain of salt.

I will never, ever have the test done again. Why bother, when they can't tell me with 100% certainty whether or not my child has down syndrome. The only good thing about that test is the ultrasound!"

"I was told my after many blood tests and special types of ultrasounds that my daughter did in fact have DS 100%. They tried to get me to get an amnio but seriously, whats the point? Unless you are going to abort due to the DS, it seems like a stupid pointless test to me that can do more harm than good. I made sure to just do my research and make sure I was prepaired. Turns out, she DID NOT have it and she is now a perfectly healthy 4 year old They are wrong more than they are right about DS"

"I had a MC in September (hence site name so pls ignore) and that was a dreadful time but then when I fell pregnant again and got to the 12wk scan without any problems it didn't even occur to us that something would come up from the scan, especially as I'm 27, we thought we'd had our bad luck!!! We had our scan saw the heartbeat etc so was over the moon and then they hit us with the info that the neck measurements alone took our chances of baby having downs from 1-842 (just based on my age) to 1-32!!! My bloods then reduced the whole stat to a 1-9 chance.
We had a CVS test at St Georges in London the next day, that short wait seemed a lifetime so I really feel for you!! BUT I can report that there is nothing as all wrong with baby w that can be detected. They can't explain why the results were as they were, especially why the bloods then made it worse, but I've been back to St Georges for a 16wk scan, 20wk scan and 30wk scan and they've included 2 heart scans and they are as sure as they can be with any pregnancy that baby w is fine and on track to meet us on 29th July (s/he will NOT be late because I say so
I found people telling me that 'don't worry it'll be fine' was soooo annoying and unhelpful, they meant well and afterall what else can they say, but it will only be the results that can stop you worrying. I can however say that as awful and dreadful and confusing as it all feels now, it really doesn't mean the news will be bad, the scan and blood tests really are just an indication and in no way does it mean you your baby will definitely have something wrong. "

Now is the time to be positive in your journal. There are so many stories of women getting that same test done and not having an issue. Focus on what is good right now....everything's going to be okay.

They just called to schedule my ultrasound. March 6th. I'm not liking that...but what can I do. After I've had a day or so to digest this, I know I won't be nearly as worried. But right now it's just a little hard to swallow. Barry wanted me to reschedule tonight's gender scan but I'm not doing that. I'm going to find out if my little angel is a girl or boy TONIGHT. :-)

Thank you so much for taking the time to find that information for me. xoxo This is what I'm hearing from everyone, including my own Dr.! Now this maternal fetal medicine appointment is going to set us back several hundred dollars, which blows. Barry and I talked about this risk before we even got pregnant. We chose to try again anyway, even though at our age the odds were against us. Back then I told him I would do the blood work and even get the ultrasound but I will not do an amnio. I'm standing pretty firm on that. I talked to him a little bit ago and he agrees. If there are markers in the ultrasound...we'll just have to do some research and prepare ourselves the best we can.

I'm going to try to focus for the rest of today on my gender ultrasound this evening. 7 1/2 hours away....

I am with you on the amnio. There's just too much risk there for me. Now the ultrasound on March 6th will be looking at what? Is that where they check out the neck tissue? That's included in this "maternal fetal" appointment? It's nice you guys have such good communication (you & Barry) and can talk everything out.

I'm glad you're keeping the gender scan. I can't wait to hear!! My friend is waiting to find out the sex until the birth. I'm pretty sure I couldn't do that.

The maternal fetal medicine appointment is at a different hospital, better equipped to deal with such situations. In fact, if during L&D I have issues, baby could be shipped to this hospital. Anyway, the appointment will be a session with a maternal fetal medicine specialist who will explain the u/s, the tests, the risks, and what to expect from a DS child. Then the u/s where they will yes, look at the neck tissue, and also take some measurements of the skull and the heart. Then I'll meet with the Dr. It'll likely be an all day appointment. My understanding is that the blood test result of 1:25 only means that I am one of 25 women who are at risk to have a DS baby, not that baby. That could just be my age. I'll be 38 the month this baby is born, so I understand those statistics. For women in my age bracket who are pregnant, I am 1 of 25 that 'could' have a DS baby. Those odds are still pretty low. I never had an NT scan, like a lot of women get. I don't know why. I declined the MaterniT21 test because it's not covered by my Ins. It would've cost me $400. There is also CVS testing, which I didn't want to do, also not covered. I don't know if I've ever prayed so much in my life. But right now, all I can do is try to stay positive. Baby surely doesn't need me to stress.

There is no way I'm rescheduling or canceling the gender u/s. I still want to know if I should be buying pink or blue.

You are so well versed in what your insurance covers and what it does not cover. Smart girl. Sounds like a good appointment to have for information. I wish the appointment could be sooner for you....although I must say you sound much stronger every time I talk with you . $400. Yikes. Expensive. I absolutely think you staying positive is a super idea. I think about a lot of the time I've already spent worrying....

YAY!! To gender ultrasound!! I'm going to try to stay up and look for the results for your scan! YAY!! I feel like I'm going to drop my head on the desk right now and sleep for two hours....bluh. SO TIRED>

I feel ya on the fatigue! I've been super tired lately too. And I usually go to bed by 9-930. I do, however wake up around 430 every morning. My alarm is set for 6am so you can imagine how irritating that is!

I really don't know a lot about what my insurance covers because it's through Barry's work and they don't like to tell me anything. Apparently I'm just the measly wife. It seems like every time I call to check on whether or not something is covered, I get the run around before they'll tell me anything. He's given them permission to talk to me a million times! Ugh.

I've done so much reading today on the quad screen and results. I feel much better...but still a little worried. I guess that 'little bit' won't go away until I'm holding a healthy baby. If you want to know the truth, I'm more worried about how Barry would handle having a special needs child. And my only fear, as he and I have discussed, is how I would feel about the way other people would treat my child. I guess right now it's too soon to really be worried about anything. I'll do what I have to, when I have to.

Leaving work in 20 minutes...picking up Gabe, making dinner and going to the ultrasound place. I'll try to get on tonight to update you. I'll have a few phone calls to make when we leave there.

It's a boy!

Hi everyone: http://i18.photobucket.com/albums/b107/thissami/Babies/BFP%20August%20baby/22113hieverybody_zps81497627.jpg

It's a boy!: http://i18.photobucket.com/albums/b107/thissami/Babies/BFP%20August%20baby/22113itsaboy_zps93a82124.jpg

I'm not big on 3d images, but here's a cute one:
http://i18.photobucket.com/albums/b107/thissami/Babies/BFP%20August%20baby/221133dbaby_zps0a662682.jpg

Hb was 154. He was moving pretty much the entire time and kept grabbing his junk. lol I guess my mommy's intuition was right. :-)