Community post

Found out some more blood test results. I could see that my TSH are at 2.9 and T4 at 9, which means that they're both within the reference levels. However, they've changed since the last time I got them checked. In both april and october of 2017 my TSH were at 1.4 and in march 2018 it had increased to 2.0. So in two years it has more than doubled. I've only gotten T4 checked once before and that were in march 2018. At that time it were 11.1, which means it has decreased. So even though both techically are within the reference levels, they still hint that it may be hypothyroidism. But we'll see what the doctor has to say next tuesday.

As of now, I've started spotting and having my regular PMS cramps. So af will be here within a day or two and then I'll start taking birth control pills. I actually feel ok with it, because I really want to graduate and get a full time job before getting pregnant, or at least giving birth. I would love it if we could make our dream come true by then too. That dream consists of buying a small farm, getting some animals and farm our own crops.

Oh, I forgot to mention. I checked my photos here on the site and it's 24 pages! Holy shit! I definitely have som serious deleting to do.. Because I don't feel like seeing all those pics of me line spotting, or the display of my chemicals..

Yesterday I finally had my appointment with the doctor. The first thing he did was to ask me how I was, because as he said "how your health is and what the results show may not be the same". He did a thorough exam and I even had to do an ECG. The diagnosis right now is silent thyroiditis. Which means he put me on 4 weeks of prednisolon and I also got beta blockers. He would also write a referral to the endocrinologist so that they could take over and do some more checkups, such as a thyroid scintigrafy. I felt really good after walking out of there, to finally have someone who listens to me and actually believes me. It remains to be seen though, if they can make the silent thyroiditis to heal, or if it's going to develop into hypothyriodism.

My referral finally arrived in the mail. I got an appointment in about 5 weeks from now, and I also got some papers to take with me to the blood lab a week before that. They want me to leave some blood samples a week before the appointment, to check the levels again. I thought I would have to travel to another city for this appointment, but it turns out I didn't have to. So that's a bonus.

So, today was the day for my meeting with the "specialist". A week ago I got my blood samples done and today I saw the doctor. That appointment was a total waste of both my time, energy and money! First of, I barely sat down before he said they wouldn't do anything since my numbers are "within the reference". It apparently didn't matter that my TSH slowly are increasing at the same time as my T4 are decreasing.. My TSH are still at 2.9 and my T4 at 10. The only thing he said were that my TPO are still a bit high (went from 190 to 100), so I have to do another blood sample in 3 months time..

After he checked my blood pressure, lugns and heart, he asked me how I was feeling. I said "as well as you can feel with fibromyalgia". His response got my blood boiling! He said: "You know, it's only here in Sweden that fibromyalgia exists. In the rest of the world it doesn't. You know you have to excersice your muscles a bit". It was like he were telling me I'm only a hypochondriac that doesn't excersice enough. Right then and there I knew it wouldn't make any difference what I said about my suspected hypothyroidism, he'd already made up his mind and knew better, since he's the doctor...

It's funny how a simple sentence can completely ruin your day. An hour later I'm still just as mad! I'm seriously thinking of reporting him somehow, because what he said aren't ok! As a doctor he shouldn't diminish a diagnosis like that. And it's also completely bullshit that fibromyalgia doesn't exist in the rest of the world..

Hey pandorica! I’m so sorry to see that you’re so frustrated after your so long waited appointment with the doctor. I’m so glad to see you again though!
What he said is not true at all. My mother suffers for years from fibromyalgia and we don’t live in Sweden. We’re in Greece. It causes severe pain to the point she often cries. I’m so sorry you have to go through this. I wasn’t aware!
His whole attitude sucked and once more I’m convinced that most of doctors aren’t honoring their Hippocratic oath but they’re more interested in their pockets. Pffff... so sorry hun!
I hope you can calm yourself down after this horrible experience and maybe you soon will get some descent answers!!

@Alex - Thanks hun. I'm not in here as much as I used to, I simply don't have the energy. How is everything going with you?

Yeah, I know what he said is total bullshit! I regret nog calling him out on it, but I will definitely submit a complaint to the hospital. It's not ok for a doctor to outright lie and also diminish their patients diagnosis. I don't care what his personal thoughts are of fibromyalgia, but as soon as he's working he has to be professional! If I have to go there again, it will definitely won't be to him!
I'm not as mad as I was on monday. Now it's slowly turning into dejection. I'll just have to wait 3 months and see what the blood results are then, if I don't start to feel worse before then.

The year is soon coming to an end and it's only a few more days until it's christmas break for both my son and me. It's going to be so nice to finally have some time to relax and actually sleep! And maybe I'll have some energy to do something I enjoy, 'cause seldom have the energy to do both what I have to and what I want.

After the break there will be about 2 weeks of studying before I do my internship, with the director of a nursing home. And then there's only a few more months until I graduate! Hopefully it won't be that long before I get a full time job too. And when that happens, I'm definitely coming off the pills.

Poppin' in to write a small update. First off, two months ago my doctor wanted me to take some blood samples to check my thyroid levels again. Well, my TSH has risen to 3.3 but my T4 remains stable around 10-11. Since it's still "within reference" (4.0) he won't do anything more than send me to check my levels again after 6 months, which will be in august. Unfortunately I'm rather convinced my TSH will continue to rise. It may sound odd, but I actually hope it rises just above 4.0 so that I may finally be able to get some help..

Secondly, I actually got a job! Since I don't graduate until june I will only work when I decide I have the time, which will be a few hours a week. When I finally graduate I'll work full time for almost a year and a half (until october 2021) when my contract ends. I really hope I'll be able to come off the pill in a few months, because I really don't like how they make me feel and now even my husband is displeased with them. They have totally removed my libido.. It's not that I don't enjoy it when we have sex, because I really do, but I don't feel the urge anymore like I used to. And it really sucks. So I'm looking forward to coming off them for more than one reason. I guess only time will tell when that will be.